SP0590 Session - 129th Maine Legislature
 
LR 2517
Item 1
Bill Tracking, Additional Documents Chamber Status

JOINT RESOLUTION RECOGNIZING MAY AS PRADER-WILLI SYNDROME AWARENESS MONTH

WHEREAS,  Prader-Willi syndrome is a rare, noninherited genetic disorder affecting approximately 1 in 15,000 people; and

WHEREAS,  nearly every system in the body is affected by Prader-Willi syndrome, but the hallmark symptom is extreme hunger coupled with a slow metabolism; and

WHEREAS,  other common symptoms of Prader-Willi syndrome include behavioral challenges, obsessive compulsive disorder, anxiety, sleep problems and scoliosis; and

WHEREAS,  the Foundation for Prader-Willi Research was established in 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi syndrome lead more healthy and fulfilling lives; and

WHEREAS,  the Foundation for Prader-Willi Research is composed of hundreds of parents, family members, researchers and others who are interested in addressing the many issues related to Prader-Willi syndrome, including childhood obesity, developmental delay, psychiatric disorders and autism spectrum disorders; and

WHEREAS,  the mission of the Foundation for Prader-Willi Research is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development; and

WHEREAS,  since May of 2010, Prader-Willi Syndrome Awareness Month has mobilized the Prader-Willi syndrome community to raise awareness and educate others in their communities and across the country; now, therefore, be it

RESOLVED: That We, the Members of the One Hundred and Twenty-ninth Legislature now assembled in the First Regular Session, on behalf of the people we represent, take this opportunity to recognize May 2019 as Prader-Willi Syndrome Awareness Month.


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