An Act To Improve Efficiency and Effectiveness of Early Intervention and Early Childhood Special Education for Children from Birth to Eight Years of Age through Improved Oversight, Accountability and Interagency Coordination
PART A
Sec. A-1. 20-A MRSA §7209, sub-§4, ¶B, as enacted by PL 2005, c. 662, Pt. A, §30, is amended to read:
Sec. A-2. 20-A MRSA §7209, sub-§4, ¶C, as enacted by PL 2005, c. 662, Pt. A, §30, is amended to read:
Sec. A-3. 20-A MRSA §7209, sub-§4, ¶D is enacted to read:
Sec. A-4. 20-A MRSA §7209, sub-§8, ¶F, as enacted by PL 2005, c. 662, Pt. A, §30, is amended to read:
Sec. A-5. 20-A MRSA §7209, sub-§8, ¶G, as enacted by PL 2005, c. 662, Pt. A, §30, is amended to read:
Sec. A-6. 20-A MRSA §7209, sub-§8, ¶H is enacted to read:
Sec. A-7. 22 MRSA §1532, as enacted by PL 1983, c. 848, §2, is amended to read:
§ 1532. Detection of cognitive disability
The department may shall require hospitals, maternity homes and other maternity services to test newborn infants, or to cause them to be tested, for the presence of metabolic abnormalities which that may be expected to result in subsequent mental deficiencies cognitive disabilities. The department shall promulgate adopt rules to define this requirement and the approved testing methods, materials, procedure and testing sequences. Reports and records of those making these tests may be required to be submitted to the department in accordance with departmental rules. The department may, on request, offer consultation, training and evaluation services to those testing facilities. The department shall adopt rules according to which it shall in a timely fashion refer newborn infants with confirmed metabolic abnormalities to the Child Development Services System as defined in Title 20-A, section 7001, subsection 1-A. The department shall also adopt rules according to which it shall in a timely fashion refer a newborn infant to the Child Development Services System if at least 6 months have passed since an initial positive test result of a metabolic abnormality without the specific nature of the metabolic abnormality's having been confirmed. The department and the Department of Education shall execute an interagency agreement to facilitate all referrals in this section. In accordance with the interagency agreement, the Department of Education shall offer a single point of contact for the Department of Health and Human Services to use in making referrals. Also in accordance with the interagency agreement, the Child Development Services System may make direct contact with the families who are referred. The referrals may take place electronically. For purposes of quality assurance and improvement, the Child Development Services System shall supply to the department aggregate data at least annually on the number of children referred to the Child Development Services System under this section who are found eligible for early intervention services and on the number of children found not eligible for early intervention services. In addition, the department shall supply data at least annually to the Child Development Services System on how many children in the metabolic abnormality detection program were screened and how many were found to have a metabolic disorder. The provisions of this section shall requirement in this section that a newborn infant be tested for the presence of metabolic abnormalities that may be expected to result in subsequent cognitive disability does not apply to a child if the parents of a that child object to them on the grounds that the test conflicts with their religious tenets and practices.
Sec. A-8. 22 MRSA §8824, sub-§1-A is enacted to read:
Sec. A-9. 22 MRSA §8943, as enacted by PL 1999, c. 344, §1, is amended to read:
§ 8943. Central registry
The department shall establish and maintain a central registry for cases of birth defects to accomplish the purposes of this chapter and facilitate research on birth defects. The submission of information to and distribution of information from the central registry are subject to the requirements of this chapter and other provisions of law. Information that directly or indirectly identifies individual persons contained within the registry is confidential and must be distributed from the registry in accordance with rules adopted by the department. The department shall adopt rules according to which it will in a timely fashion refer to the Child Development Services System children with confirmed birth defects who may be eligible for early intervention. The department and the Department of Education shall execute an interagency agreement to facilitate the referrals under this section. In accordance with the interagency agreement, the Department of Education shall offer a single point of contact for the Department of Health and Human Services to use in making referrals. Also in accordance with the interagency agreement, the Child Development Services System may make direct contact with the families who are referred. The referrals may take place electronically. For purposes of quality assurance and improvement, the Child Development Services System shall supply to the department aggregate data at least annually on the number of children referred under this section who were found eligible for early intervention services and on the number of children found not eligible for early intervention services. In addition, the department shall supply data at least annually to the Child Development Services System on how many children had data entered into the registry. For a child whose parent or legal guardian objects on the basis of sincerely held religious belief, the department may not require the reporting of information about that child to the central registry or enter into the central registry information regarding birth defects of a that child whose parent or legal guardian objects on the basis of sincerely held religious beliefs.
PART B
Sec. B-1. Training and support to regional site boards. The Department of Education shall develop and present to the Joint Standing Committee on Education and Cultural Affairs and to the state interagency coordinating council described in the federal Individuals with Disabilities Education Act, 20 United States Code, Section 1441 a plan for improving training and support to Child Development Services System regional site boards of directors. The Department of Education shall present the plan no later than 7 days after the effective date of this Act.
Sec. B-2. Unmet needs monitoring. To assess the continued provision of free, appropriate public education to children after transition to public school, the Department of Education shall develop a plan to review unmet needs in school administrative units monthly or bimonthly and implement a pilot plan among no fewer than 6 school administrative units, including a mix of small, medium and large districts. The department shall, no later than January 31, 2008, present the pilot plan to the Joint Standing Committee on Education and Cultural Affairs.
Sec. B-3. Data linkage. The steering committee of the Maine Education Policy Research Institute in the University of Maine System may include a targeted research project to the fiscal year 2007-08 work plan to permit the principal investigators of the Maine Education Policy Research Institute to provide such technical assistance as may be required to complete the investigation outlined in this section. Upon the approval of the steering committee of the Maine Education Policy Research Institute, the principal investigators of the Maine Education Policy Research Institute may conduct a review of the necessary technical and legal advances that would enable data linkage to facilitate research projects that would involve linkage of personally identifiable health and MaineCare data and personally identifiable education data in a way that would be in compliance with federal privacy law and regulation, including the federal Family Educational Rights and Privacy Act of 1974, 20 United States Code, Section 1232g (2006) and the federal Health Insurance Portability and Accountability Act of 1996, 42 United States Code, Sections 1320d to 1320d-8 (2006). The Maine Education Policy Research Institute may consult with the Office of the Attorney General and with the Office of Policy and Legal Analysis for advice on identifying which, if any, state laws, rules or policies would have to be changed to enable or facilitate such studies within the bounds of federal law and regulation. This report may include a design of a pilot study to test the technical advances outlined in this section and may also investigate the possibility of data linkage for assessing the effectiveness and efficiency of delivery of early intervention, education and health and human services to individuals with disabilities. The report may describe data linkage with a broad range of research questions. The report may address how to use data linkage studies to assess the effectiveness and efficiency of delivery of early intervention, education and health and human services to individuals with disabilities, including the number of case managers per child. A goal of such work is that the Department of Education and the Department of Health and Human Services work together to determine how data systems can be designed to facilitate analysis of data across departments.
If the steering committee of the Maine Education Policy Research Institute approves the inclusion of a targeted research project as outlined in this section to the fiscal year 2007-08 work plan, the principal investigators of the Maine Education Policy Research Institute shall deliver a report on or before January 31, 2008 to the Joint Standing Committee on Education and Cultural Affairs.
Sec. B-4. Transition policy. The Department of Education shall develop, in consultation with school administrative units and Child Development Services System regional sites, a policy that articulates a consistent method for transition of children from the Child Development Services System to school administrative units. This policy must articulate the transmittal of records of children both previously and currently served by the Child Development Services System.
Sec. B-5. Interagency agreement. The Department of Education and the Department of Health and Human Services shall revise the interdepartmental agreement. The agreement must articulate the responsibilities for appropriate referrals to the Child Development Services System from the metabolic screening program under the Maine Revised Statutes, Title 22, section 1532, from the newborn hearing screening program under Title 22, section 8824 and from the central registry for birth defects under Title 22, section 8943. The agreement must also articulate clear definitions of the roles and responsibilities of the respective departments and their regional service delivery systems in implementing a high-quality early childhood system consistent with the requirements of Parts B and C of the federal Individuals with Disabilities Education Act, 20 United States Code, Section 1400 et seq., as amended.